yep, I’m disabled. parking placard and everything.
you’re probably wondering why someone in my line of work would make a whole section on their website for this, and honestly, sometimes I wonder the same thing. But for the most part, this helps manage the expectations I have for myself and that my subscribers have for me.
what that means for my content
Generally, I have pretty extreme fatigue. There’s a lot going on in my body and not much of it is good for me. Since most of these are autoimmune disorders, it means my body is working at least twice as hard at all times. It spends energy on hurting me, and it spends energy on helping me heal what it’s done. Because of this, I have to be really careful with my energy and always thinking about what the consequences will be for everything I do, because I need to plan around the bad things so that I can still continue to live my life the way I want to.
Filming videos can be really tough on my body, so I have to plan my filming days very carefully, therefore my turnaround time on customs is generally pretty slow. I’m normally working at least 2 months ahead at all times, that way if something happens (and something always does), I have a little bit of time to sort myself out before I need to get back to being in front of the camera. I have to be careful with videos that require a lot of cardio or exertion because I have a heart condition and it can make my body a bit weird for a few days. I can only do anal content when I have the money and time to get an inflammation test to check on my Crohn’s disease.
I have very little patience for nonsense. I try to create resources for people to answer their own questions, and I have a very ‘take it or leave it’ approach when it comes to selling content. I am not unfriendly with the block and restrict buttons, but I’m still an understanding human.
Please note that nowhere have I said I embrace this for any reason but compassion.
feel free to google it
Neurodivergent
Asthma from youth
Post Concussion Syndrome – 2006, 2008, 2010, 2011, 2013, 2025
Factor V Leiden – 2013
Fibromyalgia – 2015
Postural Orthostatic Tachycardia Syndrome – 2015
Ankylosing Spondylitis, HLA-B27 gene – Jul 2015
Crohn’s Disease – Jul 2017
Hypermobility Spectrum Ehlers-Danlos Syndrome (hEDS) – 2018
Mast Cell Activation Syndrome (MCAS) – 2018
Small Fiber Neuropathy (SFN) – Nov 2018
Complex Regional Pain Syndrome (CRPS) – 2020
Anti–Mi-2β autoantibodies & Myositis – 2025
+ ambulatory wheelchair user :-)
the thing is, it actually makes me awesome
I’ve been disabled in one way or another for my entire life, and I’ve never known anything else. I’ve had to learn to adapt to situations that weren’t made for me from a very young age. It makes me creative and clever, it gave me excellent time management skills, it is nearly impossible to overwhelm me, I am grateful to be able to do chores and take care of my home and my things, I am happiest when my body allows me to work, I’m empathetic and kind because I know what almost every physical sensation feels like at this point in time. Somehow, despite my impending doom, I am a bucket of rainbows and sunshine with glitter coming out of my ass. I know how to set boundaries with myself and with others, I’m stubborn in the best ways, and I’m excellent at knowing what I can handle and advocating for myself.
Basically, you should know I’m disabled because you should know who you’re fucking with.
